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Our specialists in the new Rare Diseases Council

Opublikowano:
Nasi specjaliści w nowej Radzie ds. Chorób Rzadkich
The Rare Diseases Council is a subsidiary body of the Minister of Health, and its tasks include initiating and substantively monitoring the implementation of the various stages of the Rare Diseases Plan. On December 3, the regulation establishing the composition of the council came into effect. Prof. Anna Kostera-Pruszczyk, Head of the Department of Neurology MUW, became chairman of the Council for 2024-2025. Krzysztof Szczałuba, MD, PhD, Director of the Center of Excellence for Rare and Undiagnosed Diseases MUW, became a member of the Council.

In addition, Prof. Anna Kostera-Pruszczyk is a member of the Council of the Center of Excellence for Rare and Undiagnosed Diseases MUW and a member of the Council of the EURO-NMD European Reference Network. The department led by the professor is among the European leaders in the area of neuromuscular diseases and is the only one from Poland to belong to the elite EURO-NMD European Reference Network. From 2022 to 2024, Prof. Anna Kostera-Pruszczyk served as deputy chairman of the Rare Diseases Council.  

Krzysztof Szczałuba, MD, PhD, is a Director of the Center of Excellence for Rare and Undiagnosed Diseases MUW, which brings together university clinical and scientific teams that deal with patients with rare diseases on a daily basis. He is also an employee of the Department of Medical Genetics MUW.